Friday, December 9, 2016

Here We Go

It's 12 am . You think by now this would become a walk in the park , some. Tragic error I'm used to , the same old drill over and over . But as I watch my heart monitor once again go from 74 to 110 I know what's coming . Epilepsy sucks . I take my heart medicine it's not working . And im stuck wondering will I end up in the hospital tonight ? I don't want sympathy , it wouldn't even do epilepsy any good . Your alone in it . When it happens a fear strikes you , that can't be controlled . Will I die tonight ? Is all I will imagine . No one knows what it's like to feel that way unless you've almost died,that's the only way I can explain what a seuzure is like . No cure . I only have mine at night . My data I try to fill with joy because my nights are full of terror . Maybe I'll get some sleep . Maybe I should blog more about epilepsy . So more people become aware .

Tuesday, December 6, 2016


The fit bit - you may have heard of the trendy device , it reads your heart rate , tells you sleep patterns and your excersise steps . Seems trivial but let me tell you how it saves my life every day .
Even better how it did just moments ago . I sat up in my bed , I began to feel sick , my heart rate was 85 a little high for laying in bed at 11 it's usually 65. I began to feel warm I couldn't breathe . I began to panick , panick because I couldn't breathe . I looked down at my fit bit it read 130 as my heart raced through my chest , and of course it was blinking I needed to charge it , fantastic right now !
I felt like I was going to be sick ! I got up turned the heater off , grabbed water and took heart medicine to slow my heart rate . I threw my fit bit on the charger for a moment and my heart raced harder . I knew I was going to die . I scrambled to find my phone to call 911 . I couldn't find it any where . I put my fit bit back on to only watch my heart climb one beat per minute more and more with each breath . I was crying , I knew at that moment there was nothing I could do , where was my phone ? I knew I was having a seizure . Every moment I live with my phone on me and now it's gone

With in 15 minutes of crying I saw my heart rate finally decline , I felt like I had the worst flu of my life and I feel lucky to be alive every time . Thank god I found this fit bit , that can tell me my heart rate when to take my medicine and when I may be having a seizure . If anyone you know has seizures but one it could save them too